Not an actual patient.Impact of HypoPARA
Impact of
low or missing PTH
Why labs aren’t telling the full story
Chronic HypoPARAthyroidism (HypoPARA) isn’t just about low calcium; the main problem is low or missing PARAthyroid hormone (PTH). That’s why many people living with chronic HypoPARA may have labs that show normal calcium levels but still don’t feel their best.
How chronic HypoPARA impacts life
If your symptoms are impacting your overall physical and mental well-being, you’re not alone. In a study of people living with chronic HypoPARA:
From a study on the impacts of chronic HypoPARA on functioning and well-being based on interviews from 5 clinical experts and 42 patients in the United States to identify areas impacted by the condition.
In a clinical study
Nearly 50% of people with chronic HypoPARA reported low well-being even with normal calcium levels.*†
* Low well-being was defined as a score of <80 on a scale of 0 to 100 on the EuroQol 5-dimension visual analogue scale (EQ5D-VAS), where a score of 0 is associated with the lowest well-being and 100 with the highest well-being.
† A study identified 203 people with chronic HypoPARAthyroidism in Sweden from 2007 to 2020, and health-related quality of life was rated in 106 of those people using validated questionnaires. Of the 203 study participants, 74% were taking calcium and 82% were taking active vitamin D.
“A lot of us push ourselves even when we know the end results will be a calcium crash, all out of guilt or in an effort to look normal. I've struggled with not wanting other people to think I'm being lazy because I'm anything but.”
Quick Check-in
How would you describe your day-to-day life with chronic HypoPARA?
